Update July 2015

Hi there! I hope you have found this blog because you are interested in learning more about pulse ox and heart defects, or maybe you saw my car with the website on the back and decided to check it out, either way: welcome. Please take a minute to read my son's story. Corbin was three months old when he passed away from heart defects but he has left an amazing legacy that continues to grow and blossom and inspire others to make a difference. It's all true and I hope you cherish it as much as I do.

I myself am currently enrolled back in college to study Diagnostic Sonography (ultrasounds and echos). I chose this field because of the passion Corbin's life has instilled in me for newborns and newborn health. I want to make a difference in someone's life and to be there for those parents who have to struggle through the "heart" journey that we found ourselves on 5 years ago.

I am not as active in social media as I used to be but that does not mean that my passion has left, it just means I have focused it in other places like college and taking care of my rainbow baby (baby after child loss) Charlie Jo. I continue to spread Corbin's story through the non profit I founded in 2013 called The Corbin Story Fund. The Fund raises awareness and education for heart defects and pulse ox as well as supporting a local child loss support group with the help of the NOAH Foundation, and we collect donations for the McDonald House in Morgantown to help families like us that have to stay there for an extended amount of time. We also honor Corbin's life through the Adopt a Highway program and clean up a local road a couple times a year.

If you were like to support this cause, please donate through paypal to: info@thecorbinstory.com

Meanwhile, I continue to volunteer with the Save Babies through Screening Foundation as a board member as well as participating with the NYMAC organization to help spread newborn screening awareness and education throughout the northern east coast.

Thank you for taking the time to check out Corbin's story and please feel free to share!

God bless.

Let's kickoff #CHDweek!

Hi there! I hope you have found this site because you are taking part in our second annual photo a day challenge!

If you have never done one before, don't worry, it's easy.
Each day has a corresponding word. You simply take a photo of anything that the word inspires you to think of. If you want to describe it literally or metaphorically, that's ok! You can write a poem, draw a picture, or even post a video. Whatever you like, just don't forget to use the hashtags #chdweek and #1in100 so that others can see your post and so that I can see your beautiful photos!

Here is the list. Feel free to share just do not alter or make your own in any way.

Have fun!

Here is my post for day one: Diagnosis
#chdweek Day 1: #Diagnosis. It was February 25th, 5 days after Corbin was born. We had just gotten out of an ultrasound appointment with a cardiologist whose exact words were "you need to take him to the ER or he is going to die." I ran from the room bawling, leaving my mom to gather up the baby. Luckily the ER was right across the street, although they ignored my heartbroken pleas to see him asap. They insisted on doing the stupid paperwork while I paced the room, praying he wouldn't die right there in the triage room.
Here he is being hooked up so they can check his heart. I had to leave when they tried over and over to get an IV in his tiny vein.
A complete stranger came up to me, said "you must be the mama, let us pray", grabbed my hand and starts praying for Corbin. I'll never forget her kindness.
That was the day we found out Corbin had life threatening #heartdefects.
(I watermark most photos of Corbin just in case) #chd #chdmom#heartmonth

CHD awareness week is a month away!

I'm SO excited to be able to host this for our second year! Last year's photo challenge was a great success and I hope to surpass that this year with an even bigger event!

CHD Week starts February 7th and runs till the 14th but the whole month is dedicated to spreading heart defect and heart disease awareness. It's all about spreading knowledge because knowledge can save a life!

If you have never participated in a photo challenge before, don't worry, it's easy!
Each day of the challenge has a work prompt. You are to take a photo or screenshot or draw a picture of something that the day's word makes you think of or inspires you to post.
Post the picture to your Facebook, Twitter, Instagram, Pinterest, or Google+ with a description of your post.
Don't forget to use the hashtags #CHDweek and #1in100 in your post so that they can be seen.
That's it!

**This is a Corbin Story original. Do not alter or make your own in any way. You are free to share and tag as much as you would like!**