Full circle

Today Corbin came full circle.
Today my baby's legacy came alive.

The very hospital where Corbin was born, where his heart murmur was detected, and where his very first pulse ox test was taken, has started screening every newborn with pulse ox because of Corbin's short life.

It feels like only yesterday when we heard the news he would need heart surgery. The long drive in the rain to Morgantown to await surgery, the Ronald McDonald house, the waiting...oh the waiting. Three months of waiting. But my baby fought so hard. He fought for his life, but Corbin did not lose his battle, he was instead freed from the pain.

 "God saw him getting tired,
a cure was not to be.
He wrapped him in His loving arms,
and whispered, "Come with me."
He suffered much in silence,
his spirit did not bend.
He faced his pain with courage,
until the very end.
He tried so hard to stay with us,
but his fight was not in vain.
God took him to His loving home,
and freed him from the pain."

It has only been 15 months since Corbin passed and some days it feels like a lifetime ago, yet on other days, I'm right back there in that waiting room, eyes pressed shut, praying to God that my baby makes it through another surgery.
To say I'm stunned we got a law passed in three months is putting it lightly. I am in awe, shocked, speechless, amazed, and humbled how God has helped me and my family through this hard time. For my son to go through so much and not make it, but then to change the world and save lives!! Oh, how it takes my breathe away.

I want everyone reading this to know that all it takes is one loud voice to make a difference. If you have a passion for a cause, all you need to do is roar, and change will happen. Do not stop. Do not falter. You have a purpose and a passion that can affect the world; do not let that go.

So here's to Corbin. Here's to the Peanut who showed my what life was really about, how to be patient and understanding, how to slow down and appreciate the little things, and especially, how to make a difference. Thank you Corbin, my little lion. Mama loves you so very much.

Yesterday I was lucky enough to stop by the hospital right as they were about to test their very first baby with pulse ox. I got to talk to the nurses and the very doctor that detected Corbin's heart murmur. I thanked him for what he had done and told him that this bill never would have come to pass if he had not caught Corbin's murmur. By that one act, he has in turn saved other lives.
Monkey went with me to the hospital and got to see the very pulse ox machines that are going to save lives.



All thanks to his little brother.
I am one proud Mama.

To Corbin.

Another graphic, please share!



Pretty much speaks for itself, don't ya think? :)

Dear Adele..


I heard you were expecting your first child, congratulations! I'm sure this is a very exciting time in your life and you must be anxious to find out boy/girl.

I wanted to share something with you. Did you know heart defects affect 1 in 100 babies? Don't worry though! There are some questions you can ask and a test to help check your baby's heart.

At your 20 week ultrasound, take this flier with you to help you ask about your baby's heart.


I know finding out the sex if your baby is the most exciting time! I was nervous and excited with both my pregnancies to find out. What I wish I knew then were these questions and maybe we wouldn't have been surprised when my second son was born with heart defects.

There is also a test to help detect heart defects after birth. It is called pulse oximetry. It is quick and painless and you can hold your baby while it is done. This is another thing I wish I knew about when I was pregnant. Don't you want to feel the extra security of knowing whether your child has the most common birth defect? Every mom I have told this to has assumed it was done already, but that's not always the case. In most places you have to ask for this test, but that's ok! I have another flier to help you ask!

I hope you don't mind me sharing this with you. I'm not trying to scare you, only educate you. When you are a new mom there are a lot of scary things when it comes to babies! I simply want to help ease those worries by letting you know a few life saving tips.
1: ask about your baby's heart at your 20 week ultrasound
2: ask for pulse ox
Not to hard to remember right?!

And just in case, here are the signs of a possible heart defect for you to be aware of. I hope you never have to refer back to this.


Again, congratulations! I wish you a healthy and beautiful pregnancy that ends with a snugly, pink, healthy bundle of beauty.

With all my love,
Corbin's mama

New design and a new flier

First, what do you all think of the redesign?
The background behind the banner isn't permanent but I'm not sure where the code for it is within the whole HTML sooo...

Second, I made a new flier that I am so proud of. I just cannot stop smiling.
Check it out..


Please don't hesitate to share! The more we all share, the more people we can reach, and the more lives we can save.

Don't forget: CORBIN and learn the signs of a possible heart defect!

Want to help save lives?

Do you want to help me save lives?

It's really easy.
All you have to do is share. Share Corbin's story, share his legacy of Corbin's Bill, share information about pulse ox and newborn screening.
Share.

So easy.

I finally got around to creating a FB page for this blog and along with it, I created a button you can share on your own blog!



Just copy the code to the right>>>>>
 add it as an HTML gadget on your blog, and you're done!




Want to share Corbin's Story? Share this blog or the FB page!
https://www.facebook.com/pages/The-Corbin-Story/407931595925782

Share information on pulse ox: www.pulseoxadvocacy.com

Share information on newborn screening: http://www.savebabies.org/ or http://www.babysfirsttest.org/


Together we can make a difference and save lives.
All you have to do is click.









Help!

Ok everyone, I need your help!
I knew this would come up eventually but I didn't think it would be so soon. I am working on a project right now to print off and distribute flyers about pulse ox and heart defects to the WIC offices across the state. I have gotten the go-ahead from the WIC director and he suggested I start out with 800 flyers.
The problem with that is:
1. I can't print 800 flyers from home, I just don't have the time, the paper, or the ink.
2. I can't afford to pay a printing service to print off 800 flyers. Just 200 flyers was over $120.
3. It would be great to have these by Monday for the Local Agency WIC directors meeting.

So I'm making a call to all of you to help me think of ideas! I suggested to the WIC director that I just focus on one WIC office at a time so it would be possible for me to keep up. I can easily print off 50 flyers at home and take them to my local WIC office, that's no problem. I just don't have the money or time to take care of 800 flyers for the state.
Should I hold a fundraiser to help pay for a bulk flyer order?
Should I enlist the help of friends and family to have them print off flyers as well?
Should I tackle this one office at a time?
How do I pay for paper and ink?

Keep in mind, I don't have to have this done by Monday; that is the day of their directors meeting so it would be easier to hand out flyers for all the regions.

I trust you all to help me figure this out! Please leave a comment and let me know what you think!